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6th World Conference on CDG Program

The theme of this edition of the conference is “Building a collaborative community-centric strategy to boost drug development for all CDGs”.

program and panelist
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How can you help our CDG community? Is easy! Share among your social media and other channels the information we make available within this section and website. This raises awareness, accelerates diagnosis, and secures better care and management for our CDG children and adults!

The 6th World Conference on CDG (WCCDG) for CDG families and professionals include 3 educational paths:

  • World Think Metabolic, Think CDG Academy
  • World CDG Advocacy and Leadership Academy
  • 6th World Conference on CDG
agenda 2.0

Check the Key Dates here

Meet our amazing panelist

Dear families, professionals, colleagues, and friends:

It is with great pleasure that we invite you to the "6th World Conference on CDG: “Building a collaborative community-centric strategy to boost drug development for all CDGs.” 
In the agenda, you will find all the information you need about the panelist who will be sharing their views and expertise with ALL at the World Conference on CDG.
Taking into account the genesis of this Conference, among the panelists will be: Clinicians, Health Professionals, Researchers, the Pharmaceutical industry, Rare disease experts from a different field than CDG, and people living with CDG and their family members, so that every VOICE is heard, and every CDG Community stakeholder is effectively represented.

#StandUnited4CDG

Webinar dedicated to “World Conference on CDG and related educational events”

A Webinar aimed at sharing novelties about the 6th World Conference on CDG (WCCDG) 2023, including the online preconference workshops “World Think Metabolic, Think CDG Academy” and the “World CDG Advocacy and Leadership Academy” will be held Friday 20 January 2023 from 16-17 PM (GMT), online and in English.


Registration form for webinar dedicated to “World Conference on CDG and related educational events”:

  • Learn about the 6th World Conference on CDG (WCCDG) for CDG families and professionals here, which includes 3 educational paths:
  • World Think Metabolic, Think CDG Academy
  • World CDG Advocacy and Leadership Academy
  • 6th World Conference on CDG
  • Current Personal and contact details
  • Electronic informed consent
  • Other information
  • Communication Preferences
  • Complete
Personal Information


One of the marvelous things about community is that it enables us to welcome and help people in a way we couldn't as individuals.
by Jean Vanier

Copyright © APCDG & CDG & Allies – PPAIN, Portugal 2022. All rights reserved. No part of this questionnaire may be reproduced, distributed, or transmitted in any form or by any means, including photocopying, recording, or other electronic or mechanical methods, without the publisher’s prior written permission, except in specific other noncommercial uses permitted by copyright law.

Data Protection laws allow you to access, modify, or suppress your information anytime. If you want to exercise this right and obtain information about your data, don't hesitate to get in touch with https://worldcdg.org/contact 

We are here to help
Should you need more details please do get in touch with our Team

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For further learning about CDG, move ahead to our community tailored sections across https://worldcdg.org/  

 

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Author

Vanessa Ferreira (Senior community-centric researcher, and Global Patient Advocacy, CDG & Allies FCT, NOVA University, World CDG Organization and Portuguese Association for CDG).

Revisor

Ana Verde (collaborator at CDG & Allies FCT, NOVA University). 

Content managers

Marisa Godinho (collaborator at CDG & Allies FCT, NOVA University). 

Disclaimer

The Site cannot and does not contain medical or health advice. The information is provided for general informational and educational purposes only and is not a substitute for professional advice.

Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals. We do not provide any kind of medical or health advice. The use or reliance of any information contained on this site is solely at your own risk.

Follow Us

Like the World CDG Organization Facebook Page. Share the page on your own timeline and tell your friends to share it.
Follow us on Twitter and LinkedIn.
Subscribe to our Youtube channel and invite your friends to subscribe too.

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Page modified at Wednesday, November 30, 2022 - 13:51