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How can you help our CDG community? Is easy! Share among your social media and other channels the information we make available within this section and website. This raises awareness, accelerates diagnosis, and secures better care and management for our CDG children and adults!

There are many novelties, from us to you!

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About the “World Think Metabolic, Think CDG Academy”

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"World Think Metabolic, Think CDG Academy” is composed of virtual pre-conference workshops. It is intended for people living with CDG, their family members, academia, medical doctors, and the industry. 

The virtual pre-conference workshops are delivered in English.
The “World Think Metabolic, Think CDG Academy” aims to provide CDG stakeholders with the knowledge and skills needed to become CDG research and drug development experts. Thus, by securing your attendance and actively participating during the virtual pre-conference workshops and the face-to-face conference, you will achieve the “CDG Expert Diploma”. Stay tuned! 

IMPORTANT: The organisers are assessing ways to secure accreditation for those participating at the “World Think Metabolic, Think CDG Academy”.  We will inform you. If you have questions, write us

About the “World CDG Advocacy and Leadership Academy” 
If you are beginning to think about advocacy and do not have any experience so far, please do not worry. “World CDG Advocacy and Leadership Academy” offers a range of virtual and in-person sessions to help you. We also offer courses to help with everyday life with CDG. You can meet CDG advocates and those making a difference for people with CDG every day!
“World CDG Advocacy and Leadership Academy”  is tailored for leaders of CDG patient groups and their advocates and helps our CDG Organizations and representatives to be successful advocates.
Participants will acquire knowledge and skills to participate in research and drug development activities with all stakeholders in a collaborative and global mindset. 
“World CDG Advocacy and Leadership Academy” is delivered in a blended format, and includes active participation during the 

  • virtual pre-conference workshops delivered in English and taking place from May to June 2023
  • in-person “World CDG Advocacy and Leadership Academy” delivered in English and planned to be held in the afternoon of 20 July 2023, and the morning of 21 July 2023
  • in-person  6th World Conference on CDG sessions, that will take place from the afternoon of 21 July 2023 until 17 PM of 23 July 2023. We are investigating the possibility of simultaneous translation during the in-person conference in Caparica, Portugal.

Check the key dates of the event here

We are here to help
Should you need more details please do get in touch with our Team

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Vanessa Ferreira (Senior community-centric researcher, and Global Patient Advocacy, CDG & Allies FCT, NOVA University, World CDG Organization, and Portuguese Association for CDG).


Ana Verde (collaborator at CDG & Allies FCT, NOVA University). 

Content manager

Marisa Godinho (collaborator at CDG & Allies FCT, NOVA University).


The Site cannot and does not contain medical or health advice. The information is provided for general informational and educational purposes only and is not a substitute for professional advice.

Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals. We do not provide any kind of medical or health advice. The use or reliance of any information contained on this site is solely at your own risk.

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Page modified at Tuesday, November 29, 2022 - 10:50