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How can you help our CDG community? It is easy! Share among your social media and other channels the information we make available within this section and website. This raises awareness, accelerates diagnosis, and secures better care and management for our CDG children and adults!

Key dates:

Due to the specificities that preparing such an event has, the conference needs early anticipation and preparation. Thus, please consider the following conference dates and secure your attendance at the earliest!  
The "First World CDG Advocacy, Policy and Leadership Academy" has limited vacancies. We recommend that you don’t wait any longer to register. You can do it HERE.

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Dates to RememberWhen
RegistrationsFrom end February to June 30, 2023
ePoster Abstract SubmissionFrom March 25 to May 31, 2023
ePoster PDF uploadJune 15, 2023
Notification of poster abstracts accepted for display at conference website and Poster Wall (if attending the in-person conference)June 10, 2023
Virtual Pre-conference sessionsWill be made available at the end of June
First World CDG Advocacy, Policy and Leadership Academy* 
*main language is English
July 20 afternoon and July 21 morning
6th World Conference on CDG* 
Simultaneous interpretation from English to Spanish and from English to Portuguese will be offered.
July 21-23, 2023

We are here to help
Should you need more details please do get in touch with our Team

Ensure that you are up to date, and join our mailing list:

 Subscribe our World CDG magazine

For further learning about CDG, move ahead to our community tailored sections across  


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Vanessa Ferreira (Senior community-centric researcher, and Global Patient Advocacy, CDG & Allies FCT, NOVA University, World CDG Organization and Portuguese Association for CDG).


Ana Verde (collaborator at CDG & Allies FCT, NOVA University). 

Content manager

Marisa Godinho (collaborator at CDG & Allies FCT, NOVA University). 


The Site cannot and does not contain medical or health advice. The information is provided for general informational and educational purposes only and is not a substitute for professional advice.

Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals. We do not provide any kind of medical or health advice. The use or reliance of any information contained on this site is solely at your own risk.

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Page modified at Thursday, June 22, 2023 - 17:12