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How can you help our CDG community? It is easy! Share among your social media and other channels the information we make available within this section and website. This raises awareness, accelerates diagnosis, and secures better care and management for our CDG children and adults!

What is Ask Me Anything (AMA)? 
Ask Me Anything (AMA) sessions are opportunities for you to meet and interact with special CDG guests such as researchers, leaders, innovators, entrepreneurs, and more. During these sessions, guests will answer live any questions that you have for them about their work, areas of expertise, and anything in between.  The Ask Me Anything series provides you with an opportunity to increase your knowledge about CDG. The series also provides an opportunity for you to know that you aren’t alone! The objective by shining this light is to continually increase the support to our community and move forward towards a culture of inclusivity and a sense of belonging.

Who can attend? All sessions are intended for people living with CDG, family members and caregivers.

How is Ask Me Anything held? Ask Me Anything will be held in the form of a virtual webinar using the Zoom Application. The host is in charge of facilitating the technology used. The moderator or session leader is responsible for coordinating each session and facilitating the question-and-answer session. 
All meeting Ids, passwords, and technical meeting schedules are sent to attendee’s emails. If you have questions write us.

When is taking place Ask Me Anything? Check the calendar below: 


WhenPlaceWho accepted the challenge?
25 November 13:30-14:30 GMTOnlinePf Jaak Jaeken


WhenPlaceWho accepted the challenge?
27 January 13:30-14:30 GMTOnlinePf Jaak Jaeken
24 March 13:30-14:30 GMTOnlinePf Jaak Jaeken
23 September 13:30-14:30 GMTOnlineTo be confirmed


Ask Me Anything: Meet prominent researchers, leaders, innovators & more, and ask them anything!

Ask Me Anything Registration Form

One of the marvelous things about community is that it enables us to welcome and help people in a way we couldn't as individuals." by Jean Vanier.

Copyright © APCDG & CDG & Allies – PPAIN, Portugal 2022. All rights reserved. No part of this questionnaire may be reproduced, distributed, or transmitted in any form or by any means, including photocopying, recording, or other electronic or mechanical methods, without the publisher’s prior written permission, except in certain other noncommercial uses permitted by copyright law.

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We are here to help
Should you need more details please do get in touch with our Team

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Vanessa Ferreira (CDG & Allies FCT, NOVA University, World CDG Organization and Portuguese Association for CDG).


Ana Verde (collaborator at CDG & Allies FCT, NOVA University). 

Content manager

Marisa Godinho (collaborator at CDG & Allies FCT, NOVA University). 


The Site cannot and does not contain medical or health advice. The information is provided for general informational and educational purposes only and is not a substitute for professional advice.

Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals. We do not provide any kind of medical or health advice. The use or reliance of any information contained on this site is solely at your own risk.

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Congenital Disorders of Glycosylation
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Page modified at Tuesday, March 28, 2023 - 15:45