Paragraph with Menu

 

When were CDG discovered?

Back in 1980. It was Professor Jaak Jaeken who first described  CDG. He came across twin sisters who had a complex, undiagnosed disease. Later, he and his team found that these girls had PMM2-CDG. (add link: https://worldcdg.org/resource/major-signs-and-symptoms-pmm2-cdg-cdg-ia-infographic)

In order to raise awareness about CDG, in 2016 was launched the World CDG Day which is celebrated on the 16th May. To know more about its background and importance please click here.

Visit  https://worldcdg.org/ to learn more about CDG and how many CDG there are.

Paragraph without Menu

“It is of extreme importance that every person in the CDG community becomes one united voice and takes every conquest in a specific CDG as a victory for the whole community. It is important to keep this in mind because CDG are all connected and a new finding regarding one of them will give tools to improve basic and therapeutic research in the others.” By Vanessa Ferreira, sister to Princess Liliana who lives with CDG.

The therapeutic pipeline of potential treatments for CDG has never been so full of promise!

Secure that you are up to date about basic and therapeutic CDG advances, and join our mailing list:

 Subscribe our Newsletter

For further learning about CDG, move ahead to our community tailored sections across https://worldcdg.org/  

 

Didn't find what you are looking for?

Your question may help others

Authors

Vanessa Ferreira and Rita Francisco (CDG & Allies, World CDG organisation and Portuguese Association for CDG), Alice Neves from Sci and Volunteer Program Nova School of Science and Technology 2021. Ana Sofia Rodrigues (content management, CDG & Allies FCT, NOVA University, World CDG Organization and Portuguese Association for CDG).

Disclaimer

The Site cannot and does not contain medical or health advice. The information is provided for general informational and educational purposes only and is not a substitute for professional advice.

Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals. We do not provide any kind of medical or health advice. The use or reliance of any information contained on this site is solely at your own risk.

Follow Us

Like the World CDG Organization Facebook Page. Share the page on your own timeline, and tell your friends to share it.
Follow us on Twitter and LinkedIn.
Subscribe to our Youtube channel and invite your friends to subscribe too.

CDG
Congenital Disorders of Glycosylation
CDG Discovery

Page modified at Friday, June 24, 2022 - 15:06