World CDG diagnostic and research map

In this section you will find

Diagnosis and research
- World CDG Diagnostic and research laboratories map
Reference centers and specialists
- World CDG reference centers and specialists map
Guidelines for CDG care and management

How can you help our CDG community? It is easy! Share among your social media and other channels the information we make available within this section and website. This raises awareness, accelerates diagnosis, and secures better care and management for our CDG children and adults!

Families with CDG often have a hard time finding diagnostic and research labs that know about it. In many parts of the world, people may never get the definitive diagnosis they desperately need to get the right care because they can't get to a lab or to a clinician who suspects CDG. We are making a map of CDG by putting all of this information together, and you are welcome to tell us about labs that are leading the way in CDG diagnosis and research by filling out the survey form below. Moreover, CDG patient groups can help point you in the right direction.

Contact us and we will help you connect with the appropriate organisation!

You can complement this information by looking at Orphanet which provides a directory of medical laboratories providing diagnostic tests and research projects.

What are the benefits of putting your reference centre and/or specialist on our World CDG diagnostic and/or research laboratories map? This powerful tool can be used in many ways, such as to (1) help patients find a professional in their own country and to provide a platform for future diagnostic and/or research and analysis efforts that will be done in collaboration (2) accelerate definitive correct diagnosis and decrease time to diagnosis, (3) create an enabling network that can boost the co-organisation of events and training among different stakeholders, and (4) amplify opportunities to advance diagnosis and care for people living with CDG and their family members. This avoids unnecessary tests and treatments.
Would you like to feature your work in CDG or a reference care centre that leads care and management for people living with CDG in your country in our CDG Map? It’s easy! Complete the CDG Map Collecting Survey , found at the end of this webpage!

CDG Map Collecting Survey

Current Electronic informed consent
Pinpointing your work in our World CDG Map
Demographics and needs for CDG information
Complete

We are here to help
Should you need more details please do get in touch with our Team

Ensure that you are up to date, and join our mailing list:

Subscribe our World CDG magazine

For further learning about CDG, move ahead to our community tailored sections across https://worldcdg.org/

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Author

Vanessa Ferreira (CDG & Allies FCT, NOVA University, World CDG Organization and Portuguese Association for CDG).

Revisor

Ana Verde (collaborator at CDG & Allies FCT, NOVA University).

Content manager

Marisa Godinho (collaborator at CDG & Allies FCT, NOVA University).

Disclaimer

The Site cannot and does not contain medical or health advice. The information is provided for general informational and educational purposes only and is not a substitute for professional advice.

Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals. We do not provide any kind of medical or health advice. The use or reliance of any information contained on this site is solely at your own risk.