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With thanks to our Donors!

Glycomine is developing replacement therapies for rare genetic diseases with the goal of delivering meaningful improvements in quality of life for patients, caregivers, and families. Learn more.

Glycomine

VALE's Designs goal is to give people with special needs the same clothing opportunities as everyone else so that they can fit in all environments.

AESCDG, represents the voice of CDG families in Spain and leads several activities to support families and research.

The Foundation Glycosylation, a non-profit foundation, supports research for the development of therapies targeting CDG, aims to raise awareness of the disorder and strives to advocate for individuals living with this enzyme deficiency.

 

 

 

 

Global Genes is an organization dedicated to eliminating the burdens and challenges of rare diseases for patients and families globally. Learn more.

 

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“GLYCOTwinning: Building Networks to Excel in Glycoscience” is a project funded by the European Commission, under the Twinning Widening program of Horizon Europe, to promote scientific excellence and research in Glycoscience.

 

 

 

 

With thanks to our Supporters!

The NOVA University Lisbon has just been recognized as a member of the United Nations Academic Impact (UNAI), joining a group of over 1600 institutions from more than 152 countries that are working with the United Nations to promote global priorities such as peace, human rights and sustainable development. Learn more.

 

The NOVA School of Science and Technology (FCT NOVA) is one of the three largest and most prestigious schools of Engineering and Sciences in Portugal. It is located 15 minutes away from Lisbon, is renowned for its excellence in research, for the quality of its courses and for the large employability of its graduates (graduates, masters, doctors). Learn more.

 

Associação para a Inovação e Desenvolvimento da FCT (NOVA.ID.FCT) is a private non-profit research organization, which primarily aims at carrying out Science and Technology activities, fostering knowledge valorization and promoting the involvement of researchers, both at national and international levels, in RD&I projects in the areas of expertise of their research units. Learn more.

 

UCIBIO, the Research Unit on Applied Molecular Biosciences, is an interdisciplinary research entity that brings together researchers from the Universities of Porto and NOVA of Lisbon. The vibrant research activities of UCIBIO primarily take place at the campus of the Faculty of Sciences and Technology of the NOVA University of Lisbon (FCT-NOVA), as well as at the Faculty of Sciences (FC-UP), the Faculty of Pharmacy (FF-UP), and the Instituto de Ciências Biomédicas Abel Salazar (ICBAS-UP) from the University of Porto. Learn more.

 

 

The Institute for Health and Bioeconomy (i4HB) is a dynamic collaboration between three prominent research units:

  • iBB - Institute for Bioengineering and Biosciences (IST, Universidade de Lisboa);
  • INESC-MN - Institute for System Engineering and Computers - Microsystems and Nanotechnologies;
  • UCIBIO - Applied Biomolecular Sciences Unit (NOVA University of Lisbon & University of Porto).

Through its robust scientific and technological expertise in Health and Bioeconomy, i4HB is dedicated to making a significant impact and driving advancements in these emerging priority areas. It strives to influence both national and international policies, shaping the future of healthcare and promoting sustainable economic growth.

 

Author

Vanessa Ferreira (CDG & Allies FCT, NOVA University, World CDG Organization and Portuguese Association for CDG).

Revisor

Ana Verde (collaborator at CDG & Allies FCT, NOVA University). 

Content manager

Marisa Godinho (collaborator at CDG & Allies FCT, NOVA University). 

Disclaimer

The Site cannot and does not contain medical or health advice. The information is provided for general informational and educational purposes only and is not a substitute for professional advice.

Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals. We do not provide any kind of medical or health advice. The use or reliance of any information contained on this site is solely at your own risk.

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Page modified at Friday, June 30, 2023 - 21:28