Safety and Purity Concerns

Sugars
- Mannose
- Fucose
- Galactose
- Sialic acid
- ManNAc
- Ace-ER
- Ribitol
- GlcNAc-PI
- GlcNAc
- Concerns
Ions
- Magnesium
- Iron
- Manganese
Other
Non-Nutritional

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Safety and purity concerns

One of the problems with sugar supplementation is that in most papers reporting the use of sugar nutritional therapy, the source (supplier) and brand of the sugar used for the treatment is not detailed. Also, the sugar’s brand and source might not be the same in every country and the sugar might not be pure. Also, several companies offer “over the counter” sugars and nutritional supplements. This can lead to different results in the treatment and safety concerns, especially if the sugars are contaminated with toxic compounds (e.g., metals).

To make sure that the treatment is the same for all patients and that there are no safety risks, the sugar should be pure and the composition should be similar among different brands.

You should always consult with your physician or other health care professional before taking any medication or nutritional, herbal or homeopathic supplement, beginning any diet, nutrition or fitness plan or adopting any treatment for a health problem, whether offered on the Site or otherwise.

Keep in mind, you are not alone. Though Congenital Disorders of Glycosylation (CDG) are categorized as “rare” there is an amazing community at your fingertips working day and night to improve the lives of many people living with CDG and their family members. We want you to know everything that is available about therapies in lay language, but we suggest you enter into it at your own pace and comfort level.

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Should you need more details please do get in touch with our Team

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Authors

Vanessa Ferreira and Sandra Brasil (CDG & Allies FCT, NOVA University, World CDG Organization and Portuguese Association for CDG). Ines Santos, Tiago Martins, Madalena Raposo from Sci and Volunteer Program Nova School of Science and Technology 2021. Ana Sofia Rodrigues (content management, CDG & Allies FCT, NOVA University, World CDG Organization and Portuguese Association for CDG).

Disclaimer

The Site cannot and does not contain medical or health advice. The information is provided for general informational and educational purposes only and is not a substitute for professional advice.

Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals. We do not provide any kind of medical or health advice. The use or reliance of any information contained on this site is solely at your own risk.

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