Join us in welcoming our new team member: Tatiana Rijoff

Paola de Haas is one of the young faces of CDG Research 👩‍🔬 at the Radboud university medical centre (Nijmegen, Netherlands). She shares that she dedicates her work to develop CDG models and study immunology in CDG.

We have great news! We have extended the deadline for the 5th WCCDG Agenda Survey.

Rosália Ferreira is a Super CDG Mom and advocate. She highlights the difficult road for Liliana's sweet and sour diagnosis. She shares the main worries and wishes as a mom (autonomy, management and curative therapies) and the benefits of belonging to a CDG association.

We are launching a survey to define the agenda for the 5th WCCDG. Give us 5 minutes of your time and let us know which topics are most important for you!

Maurizio Scarpa is the coordinator of the European Reference Network for Hereditary Metabolic Diseases (MetabERN) which has a working group dedicated to CDG.

Join our CDG Art Project and send us your drawings. We will turn them into postcards for our Xmas Campaign.

Clinical management guidelines are vital for fast symptom assessment and amelioration. At the moment there are published guidelines for 3 CDGs: PMM2-CDG, MPI-CDG and PGM1-CDG.

CDG Virtual Coffees are a virtual platform where relevant topics for CDG will be shared and discussed.