Who we are
The World CDG Organization is operated by CDG & Allies - Professionals and Patient Associations International Network (CDG & Allies- PPAIN), a CDG patient-led international infrastructure dedicated (1) to raise awareness, (2) to boost community building, (3) to accelerate research, (4) and to provide you with current, reliable, easy to understand information about CDG in several languages. CDG & Allies PPAIN its based at NOVA School of Science and Technology (FCT NOVA). For more information visit FCT NOVA website. ("CDG & Allies - PPAIN ", "We", "Us" or "Our").
Together with our global CDG patient organizations and local patient advocates and related stakeholders, we are leading the battle to improve the lives of people living with CDG and their family members. The World CDG Organization relies on the entire CDG community for its continued success.