The World CDG Organization is led by CDG & Allies Professionals and Patient Associations International Research Network (CDG & Allies PPAIN) based at NOVA School of Science and Technology (FCT NOVA).
Together with our global CDG patient organizations and local patient advocates, we are leading the battle to improve the lives of people living with CDG and their family members.
The World CDG Organization relies on the entire CDG community for its continued success.
Have a question, suggestion or comment for us? Please fulfill the contact form below. (note that * star fields are required).
Visit our full listing of our global CDG patient organizations and local patient advocates.
If you do not find your organization or a local patient advocate in this list, please submit your inquiry using this contact form. We will help you!
You can also, contact a country specific rare disease umbrella organization, by visiting Rare Diseases International (RDI).
The official language at World CDG Organization is English. Our team can also communicate in Spanish, French, Italian, German and Portuguese. For questions in other languages, we count with a reliable network of volunteers that can help. Or you can contact a National Alliance representing a country in which your language is spoken by visiting Rare Diseases International (RDI).
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