Survey 1: CDG Glossaries

Several glossaries have been prepared in order to walk you throughout the CDG Symptom Prioritization Questionnaire – (CDGSPQ)

We recommend that you read the CDG glossaries before fulfilling the survey or that you use them while fulfilling the survey.

Signs & Symptoms
Treatments
Diets
Management & Rehabilitation Therapies
Health Care Specialties

If you have questions or you need help, please do not hesitate to contact us asking for help related to this survey Here.
We will be available to schedule a Skype, WhatsApp calls or Zoom meetings.

The CDG Symptom Prioritization Questionnaire (CDGSPQ) is now available for all CDG patients, family members and caregivers in

In this section:

CDG Journey Mapping

Survey 1: Prioritizing Symptoms Impacting Quality of Life for CDG
Survey 2: CDG Experiences over time from families and professionals views

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The CDG Symptom Prioritization Questionnaire (CDGSPQ) is now available for all CDG patients, family members and caregivers in

In this section:

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