CDG Brasil Seminar: Join Us on May 18 for a Session Dedicated to Community-Centered Research
As part of the World CDG Awareness Day 2025 celebrations, we’re thrilled to announce our participation in the CDG Brasil Online Seminar, taking place on May 18, 2025.
Our session, titled “CDG & Allies – A Community-Centered Research Network: Progress, Challenges and the Role of Families,” will spotlight the story and impact of the CDG & Allies – Professionals and Patient Associations International Research Network (CDG & Allies – PPAIN).
This session will highlight:
The origins of the network and its vision for research that starts with community needs
Milestones
How families are actively shaping research as co-creators and decision-makers
Research projects that are working to improve the quality of life of patients
This presentation is more than a talk — it’s a call for stronger alliances between families, researchers, and professionals. It’s a space for shared purpose, knowledge, and action.
