CDG: A Community of HOPE!
This week's edition features...
Sandro Bellinzis is a loving CDG Dad and an invested advocate.
When CDG #SLC35A2CDG burst into his (and his Family) life, Sandro felt he needed a door to knock on but he couldn't find any.
That is why Sandro decided to take matters into his own hands, creating
Sandro didn't only build a , he has built a house full of information and comfort to be shared with other #CDGFamilies.
He gives us HOPE!
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Congenital Disorders of Glycosylation (CDG) are caused by defects in the cellular machinery responsible for making and altering sugars and attaching them to proteins and lipids. There are over 140 different CDG types