STATEMENT ON COVID-19
Updated on 19th of March 2020
This is a GLOBAL recommendation.
COVID-19 outbreak prevalence and response measures vary across countries.
عربي: توصيات خاصة بفيروس كورونا كوفيد-19
Deutsch: ERKLÄRUNG ZUM COVID-19-AUSBRUCH
Eesti: AVALDUS COVID-19 PUHANGU KOHTA
English: STATEMENT ON COVID-19 OUTBREAK
Español: DECLARACIÓN SOBRE COVID-19
Français: DÉCLARATION SUR L'ÉPIDÉMIE DE COVID-19
Italiano: DICHIARAZIONE SULLA PANDEMIA COVID-19
Nederlands: BETREFFENDE COVID-19 UITBRAAK
Polski: OŚWIADCZENIE NA TEMAT PANDEMII COVID-19
Português: COMUNICADO SOBRE A PANDEMIA COVID-19
Slovenský: STANOVISKO K COVID-19 PANDÉMII
STATEMENT ENDORSED BY:
Reference Experts
Dr. Eva Morava
Mayo Clinic
Rochester, USA
Dr. Rita Barone
University Hospital of Catania
Catania, Italy
Dr. Mercedes Serrano
Hospital Sant Joan de Dèu
Barcelona, Spain
Dr. Jaak Jaeken
University Hospitals Leuven
Leuven, Belgium
Dr. David Coman
Australia
Dr. Ruqaiah Altassan
Saudi Arabia
Dr. Laia Alsina
Hospital Sant Joan de Dèu, Barcelona
Spain
Dr. Andrew Edmonson
Children’s Hospital of Philadelphia
USA
Dr. Christima Lam
University of Washington and Seattle Children’s Hospital
USA
Dr. Stephanie Grunewald
United Kingdom
Dr. Erik Eklund
Skane University Hospital and Lund University
Lund, Sweden
Dr. Mari-Anne Vals
Tartu University Hospital Children’s Clinic
Tartu, Estonia
Dr. Jolanta Sykut-Cegielska
The Institute of Mother and Child
Poland
Dr. Bradley S. Miller
University of Minnesota Masonic Children's HospitalUSA
Organisations
Research networks
Frontiers in CDG Consortia (FCDGC)
CDG & Allies - Professionals and Patient associations International Network (CDG&Allies-PPAIN)
MetabERN – European Reference Network for Rare Metabolic Diseases
Mayo Clinc
National Institute of Children´s Diseases (Národný Ústav Detských Chorôb), Bratislava, Slovakia
Patient associations
The Portuguese Association for CDG (APCDG)
CDG CARE
CDG UK
CDG Italia
CDG The Netherlands (VKS)
Asociación Española CDG (AESCDG)
Les P’tits CDG
Amour Fund (USA)