Fiona Waddell represents CDG within VKS, the Dutch Umbrella organization for metabolic diseases. When she was eighteen months old, the doctors discovered that she had liver fibrosis, but she always had problems which didn't fit the diagnosis. It was only when she was fifteen years old that she was diagnosed with MPI-CDG. She was the second patient in the world who was diagnosed with this illness.
Fiona was the first CDG patient who has had a liver transplant and due to the liver transplant she can now, lead a healthy life . She is journalist and she wants to use her journalistic skills to create greater worldwide awareness around CDG in order to help other CDG patients and families.
