CDG Virtual Coffee: The 2nd Edition is coming!
Join us for the 2nd edition of our CDG Virtual Coffees featuring "Stroke-like episodes and seizure in CDG" in the expert words of Dr Mercedes Serrano. Register HERE and send any questions you might have on these topics to sindromecdg@gmail.com until December 5th.
Our CDG Research Team keeps growing!
Meet our 3 new collaborators:
Join us in welcoming them!
To learn more about Michelle, Marta, Tatiana and the rest of our team of researchers visit HERE
5th World Conference on CDG for Families and Professionals
Draft Program is now AVAILABLE
Access it HERE
CDG Therapeutic Trials: UPDATE
Find an update to CDG Therapeutic Trials list HERE
The Worldwide CDG Community goes Virtual!
Many virtual educational and informative events have been created and promoted by different CDG patient organizations and professionals. Take a sneak peek:
- #MeettheExperts by CDG UK: HERE
- PMM2-CDG Collaboration Call by Amour Fund : HERE
- CDG: A Global Overview (Webinar in PT): HERE
Would you like to be a CDG Voice in the World?
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Do you have any important research highlights?
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Is your CDG patient association promoting a new initiative?
- Do you want to share your personal CDG story?
Write to sindromecdg@gmail.com and we will include your exciting news in the next edition (January 2021). Please send word until 5 January 2021 #CDGWorldVoice
