The Portuguese Association for CDG and other Rare Metabolic Diseases (APCDG-DMR) is a family non-profit organisation entirely run by volunteers. Their efforts are focused on forming a multi-stakeholder network, aimed at bringing together families, patient organisations, clinicians, researchers, healthcare professionals and pharmaceutical companies. The APCDG actions have a national and international dimension. and the efforts are focused on:
boosting awareness,
increasing information,
potentiating education on CDG and
fostering breakthrough research with the single goal of finding therapies in our lifetime.
