NORD Financial Assistance Program for Rare Disease Community Members Impacted by COVID-19

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At this time of crisis and with the health, safety and well-being of patients and caregivers as its top priorities, the National Organization for Rare Disorders (NORD®) launched its COVID-19 Critical Relief Program to provide much-needed assistance to members of the rare community affected by the COVID-19 pandemic. The program provides financial relief that may be utilized to support critical, non-medical needs.

Through the new program, NORD will provide financial assistance to eligible patients, covering up to $1,000 annually. It provides funds for essential expenses including, but not limited to unexpected utility expenses; cellular or internet service; emergency repairs to car, home or major appliances; and rent or mortgage payment assistance. Interested rare disease patients and families can reach out to NORD to find out if they meet eligibility requirements.

More information HERE.

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EMA communication: COVID-19



The European Medicines Agency (EMA) shared two press releases related to COVID-19:

  1. Find an Update on treatments and vaccines against COVID-19 under development HERE.
  2. Find the communication about the use of anti-malarial medicines for COVID-19 - COVID-19: chloroquine and hydroxychloroquine only to be used in clinical trials or emergency use programmes - HERE, which includes information to patients and healthcare professionals.


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