Candidate profile

The World CDG Organization (WCDGO,, the international patient-led CDG & Allies -PPAIN research network (  and the Portuguese Association for CDG are happy to announce the opening of TWO NEW research projects:

1. The development of a quality of life tool, and;

2. The assessment of vaccination and/or infection-related coping skills and actions among a rare disease community.





1. Psychology or social sciences background;

2. Interest and know-how in semi-structured interviews, quality of life questionnaires and qualitative data analysis;

3. Currently doing MSc's (preferential).



1. Identify stretagies and coping skills and/or access quality of life;

2. Working in the field of rare diseases;

3. Collaborating with an active and empowered patient community.


If you meet our CANDIDATES PROFILE, please send your CV to   

The WCDGO, CDG & Allies-PPAIN and APCDG are non-profit organizations that work in close contact and collaboration with a multi-disciplinary team that includes families and experts from all around the World. 

Predicted outcomes for these projects are:

  1. High-level scientific publications and posters at congresses, such as a unique opportunity to present at an upcoming conference with worldwide outreach;

  2. To be integrated into an international network and increase your career visibility;

  3. To create lay-language resources and activities;

  4. Recommendation letter.

Note that both projects can be done remotely and that the candidates will benefit from an inclusive and motivational working environment.


Looking forward to hearing from you!

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Page modified at Friday, November 13, 2020 - 08:55