CDG CARE and Sanford Burnham Prebys are hosting the CDG/NGLY1 Scientific and Family Conference, which will take place between February 25 and 27, 2022, in San Diego, California, and will focus on "CDG Models and Therapy”.
The CDG/NGLY1 Conference first took place in 2016 and has been held every two years since then.
"Every biennial collaborative conference is unique and current with focus areas relevant to Congenital Disorders of Glycosylation (CDG) and NGLY1 deficiency at that particular point in time.”, refers Andrea Miller, founder of CDG CARE.
She adds, "The uniqueness of this event is bringing the science and ideas/findings that are being performed in the labs and clinics directly to the patients and families who are able to attend.”
Tailored for medical professionals, researchers and scientists in the field of CDG & NGLY1, but also for patients, families and caregivers, this conference combines patient-centred science and real-world strategies for patients and families living with a CDG.
It features a diversity of speakers, ranging from "faculty of academic medical centers and private laboratories across the USA and abroad, to experienced industry experts, clinicians and devoted community therapists speakers. Among the speakers, there are also advocacy representatives and patient groups. It is an unique opportunity for parents and caregivers to share a wealth of knowledge of their experience in research, education and much more.", says Andrea.
The sessions have a plenty crucial topics such as: "Basic Science of Multiple CDG"; "Models of Glycosylation Disorder"; "CDG and NGLY1 Clinical Care Management"; "Research: current studies, opportunities for patients and future prospects"; "Innovative and recommended therapies", among others.
You can consult the program at https://bit.ly/3z5oPR9