#CDGpartnership

New Paper: Read all about it!

Dear #CDGCommunity,

We have great news - Our most recent paper "New insights into immunological involvement in Congenital Disorders of Glycosylation (CDG) from a people-centric approach " is out!

This was a project led by CDG & Allies -PPAIN and made possible by the World #CDGCommunity

If you'd like a copy, you can:

1) Send an email to sindromecdg@gmail.com or;

2) Go to https://bit.ly/PaperImmunoCDG

We will be sharing some more results of this work with you soon, so STAY TUNED!

Thank you for being the most amazing research partners #CDGResearch

#PatientCentricity

Thank you to all of those who participated, helped in the dissemination and ensorsed this project!

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CDG: A Community of HOPE with Julia Boonak

πŸ’šCDG: A Community of HOPE!πŸ’š

Next to every great CDG clinical expertπŸ‘¨β€βš•οΈπŸ‘©β€βš•οΈ, there is a quickly adapting, always learning and never-giving up CDG Family!

πŸ‘±β€β™€οΈThis is Julia πŸ‘ͺShe is a CDG Mom πŸ¦Έβ€β™€οΈShe is a CDG advocate
πŸ’­She thinks β€œone of the most magical things is seeing our families meeting with other families and then sharing experiences”

She gives us HOPE!πŸ’š

πŸ‘‰Please, subscribe the ❗️World CDG Organization Youtube Channel at https://www.youtube.com/watch?v=-6sifd38WvU ❗️ to get this and other exciting contentπŸ™
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Congenital Disorders of Glycosylation (CDG) are caused by defects in the cellular machinery responsible for making and altering sugars and attaching them to proteins and lipids. There are over 140 different CDG types.

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